The Next Generation of EDS Experts with Jeevan Mann and Delaney Kenney (Ep 122)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein interviews Jeevan Mann and Delaney Kenney about their innovative research in Ehlers-Danlos Syndrome (EDS), focusing on the use of 3D skin models and stem cells. Jeevan Mann explains how they use 3D skin equivalents to study hypermobile EDS, which offers a more efficient and scalable alternative to traditional mouse models, and discusses his personal journey of being diagnosed with a rare type of EDS. Delaney Kenney highlights her work on creating a biorepository of patient fibroblasts reprogrammed into stem cells to study molecular mechanisms and develop potential treatments. They emphasize the need for increased awareness, advocacy, and community support for those with EDS, and the importance of educating medical professionals to improve diagnosis and care. Their work holds promise for transforming understanding and management of EDS in the future.