The international consortium on the Ehlers-Danlos syndromes.
This resource discusses the need for revised nosology and diagnostic criteria for Ehlers-Danlos Syndromes (EDS), particularly in light of new EDS variants and challenges in diagnosing the hypermobile type of EDS. The international consortium comprising experts has identified gaps in the current genetic and clinical understanding of EDS, emphasizing the necessity for updated guidelines. Additionally, the formation of comprehensive management strategies for different EDS types is deemed critical, aiming to improve care for affected individuals and their families. The consortium's efforts are directed towards establishing new criteria and management guidelines to better support both specialists and general practitioners.