Patient Resource Guide

This comprehensive resource guide, authored by Kelley Moulton, provides strategies for patients with complex medical conditions like Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), and Ehlers-Danlos Syndromes (EDS) to navigate healthcare systems. It includes tips for managing appointments, working with insurance, and accessing financial support. Moulton, who is both a patient and medical social worker, offers insights on advocating within a fragmented healthcare system and suggests preparing for medical appointments, understanding healthcare terminology, and exploring different care models such as concierge medicine. The guide aims to empower patients facing challenges with diagnosis, treatment access, and financial burdens associated with their conditions.