My Life With EDS | Office Hours (Ep 117)

In this personal episode of the Bendy Bodies podcast, Dr. Linda Bluestein shares her life journey with Ehlers-Danlos Syndrome (EDS), a condition marked by hypermobility and chronic pain. From an aspiring dancer afflicted by numerous health issues to a top hypermobility specialist, Dr. Bluestein narrates her own struggles with joint dislocations and a turning point surgery for a Tarlov cyst that greatly relieved her pain. She emphasizes the critical role of movement and shares a holistic approach to managing EDS, involving strategies like nutrition, physical therapy, psychosocial support, supplements, and medication such as low-dose naltrexone. This episode offers valuable insights and practical advice for those affected by EDS, demonstrating that a multi-faceted approach can significantly improve quality of life.