My Essential EDS Advice | Office Hours (Ep 111)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. She emphasizes the importance of obtaining an accurate diagnosis, not only for validation but also to guide effective treatment. Dr. Bluestein provides advice on pacing for individuals with POTS and EDS, highlighting the importance of balancing activity and rest. She also discusses the significance of clear communication with healthcare providers and finding empathetic practitioners. Listeners are encouraged to document symptoms wisely and to seek medical personnel who understand hypermobility. Additionally, she shares practical tips for managing chronic symptoms, such as keeping a journal and employing gradual movement techniques.