Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD

In this milestone episode of the Bendy Bodies podcast, Dr. Linda Bluestein celebrates 100 episodes by discussing the challenges and rewards of hosting the show, emphasizing the importance of healthcare professionals understanding the struggles of patients with Ehlers-Danlos Syndrome (EDS) and related hypermobility conditions. The episode highlights the heavy symptom burden EDS patients experience, such as pain, fatigue, and gastrointestinal issues, and the difficulties in having these symptoms recognized by healthcare providers. Dr. Bluestein explores treatment approaches for EDS and stresses the importance of effective doctor-patient communication. She is joined by Kate Colbert, an EDS advocate, who discusses patient advocacy and the role of nonprofit organizations like EDS Guardians. They also provide a "hypermobility hack" to assist EDS patients in managing their conditions while traveling.

Published May 30, 2024