Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber
The episode highlights The Dysautonomia Project, a non-profit organization based in Florida dedicated to educating both patients and healthcare providers about dysautonomia. Dr. June Bryant and Cheryl Faber discuss the organization's history, mission, and resources, including their comprehensive book that provides both patient-friendly and medical information about dysautonomia. They offer virtual programs like DysCourse for patients and caregivers, a mini fellowship for medical residents, and an upcoming clinician program. These initiatives aim to raise awareness and provide education on the various forms of dysautonomia, with a particular focus on POTS. The organization also offers online resources such as patient assessment tools and a provider finder to help patients access knowledgeable practitioners. They emphasize the importance of education as a key treatment for dysautonomia and share their strategies for getting medical professionals involved in their mission.