Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom (Ep 102)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein interviews Lara Bloom, the CEO and President of The Ehlers-Danlos Society, about the future of diagnosing and managing Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). They discuss the challenges faced in raising awareness and educating healthcare professionals about EDS and HSD, emphasizing ongoing efforts to update diagnostic criteria by 2026. Despite progress in research and global awareness, misdiagnosis remains an issue due to outdated understanding, highlighting the need for re-education among medical professionals. The discussion underscores the importance of movement and self-care in managing symptoms, while acknowledging the complexities surrounding official diagnosis and access to care for patients worldwide. The resource seeks to inspire hope for improved clarity and treatment options in the future, owing to ongoing research initiatives.