Dr. Linda Bluestein - EDS Leadership Program - EDS the Invisible Condition

In this presentation, Dr. Linda Bluestein discusses Ehlers-Danlos Syndrome (EDS) and its intricacies, such as its subtypes, symptoms, and comorbid conditions, including dysautonomia, POTS, and MCAS. She highlights the challenging nature of diagnosing EDS due to its diverse presentations and the often lengthy process to obtain a diagnosis. Dr. Bluestein emphasizes the importance of support groups and a strong, empathetic healthcare team in managing EDS. She also touches on the ongoing evolution in the understanding and categorization of EDS, particularly in hypermobility and its genetic underpinnings. The talk underlines the significance of awareness and education, both for healthcare professionals and patients, to improve diagnosis and management outcomes.