Congressional Briefing on POTS

Dysautonomia International hosted a Congressional Briefing on Postural Orthostatic Tachycardia Syndrome (POTS) to educate policymakers on the condition and advocate for increased research funding. Lauren Stiles shared her personal journey with POTS, emphasizing the challenges of delayed diagnosis and inadequate treatment. Dr. Glen Cook and Dr. Jeffrey Boris discussed the symptoms, comorbidities (such as EDS and migraines), potential mechanisms, and the diagnostic challenges of POTS, highlighting its significant impact on quality of life. They also addressed current management strategies, focusing on both pharmacological and non-pharmacological treatments, and underscored the need for more comprehensive research to identify the condition's underlying causes and improve treatments. The briefing aimed to raise awareness among lawmakers to secure greater support and resources for POTS research and patient care.