Advice to Undiagnosed Patients by Dr. David Saperstein

Dr. David Saperstein discusses the often difficult journey of patients with complex neurological disorders like EDS and POTS who remain undiagnosed. He acknowledges that patients are increasingly turning to online resources and self-diagnosing accurately, which was less common in the past. He stresses the importance of patients being persistent in seeking specialist care, as many are often dismissed by physicians. Dr. Saperstein points out that while the internet can be a valuable tool in guiding patients to appropriate care, it is important to critically evaluate the sources for reliability. Communities and groups online can sometimes help provide the right direction, but discernment is needed to avoid misinformation.