A Winding Road Through POTS, Chiari, Ehlers-Danlos, and Tethered Cord
In this episode, Dr. Michael Goodkin, a retired cardiologist and father of a POTS patient, shares his experiences navigating the medical system from a parent's perspective. He discusses the complexities of conditions like POTS, Ehlers-Danlos syndrome, Chiari malformation, and tethered cord syndrome. Dr. Goodkin highlights the importance of understanding these conditions beyond textbook knowledge and emphasizes the role of nonpharmacological treatments, such as cranial manipulation, in managing symptoms. His insights underscore the need for personalized approaches and the challenges patients face in finding the right care. The episode encourages listeners to explore additional resources and connect with support communities like Standing Up to POTS.