86. The Unfair EDS Journey with Amanda Cassil, PhD

In this episode, Dr. Amanda Cassil discusses navigating the complex journey of living with Ehlers-Danlos Syndromes (EDS), emphasizing the importance of effective communication with healthcare providers. She provides strategies for advocacy, stressing the need to approach situations with compassion, regulate the nervous system, and accept grief as part of living with chronic illness. The conversation highlights the importance of collaboration with healthcare providers, understanding that systemic changes are slow, and highlights tools like Dialectical Behavioral Therapy (DBT) for emotional regulation. Dr. Cassil also addresses managing multiple symptoms and encourages consulting trusted individuals for guidance. The discussion offers hope and emphasizes that while the journey is often unfair, there are professionals dedicated to making systemic improvements.