85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
This podcast episode explores the development of a documentary aimed at raising awareness and providing education about Mast Cell Activation Syndrome (MCAS), Dysautonomia, and Hypermobility Spectrum Disorders. Experts including Drs. Weinstock, Afrin, Dempsey, Kinsella, and Bluestein, along with patient advocate Jill Brook, contribute to this initiative. The documentary is intended to highlight the challenges faced by patients and the importance of timely recognition and treatment of these conditions. The discussion covers the obstacles of creating concise informational soundbites for a complex topic, the necessity of an educational library to accompany the film, and the financial needs to complete the project. The endeavor also sheds light on the intricacies of MCAS, its relation to symptoms like inflammation and growth abnormalities, and how conditions such as POTS and EDS are interconnected.