EDS

68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Victoria Daylor, and Linda Bluestein, MD

In this episode of the Bendy Bodies podcast, the panel, including Dr. Cortney Gensemer, Victoria Daylor, and Dr. Linda Bluestein, discuss their recently published two-part series titled 'Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility'. This series aims to educate both patients and healthcare providers about symptomatic joint hypermobility (SJH), providing hope and management strategies despite the absence of a single FDA-approved treatment. The discussion covers the collaboration process, the importance of patient education, and the diverse presentations of SJH. The experts emphasize that SJH is not rare and elaborate on the importance of finding compassionate healthcare providers, even if they are not experts on the condition. The future of research in joint hypermobility and its related comorbidities, such as mast cell activation and POTS, is also considered, with calls for more high-quality, peer-reviewed research in the space.