42. Pursuing a Diagnosis with Linda Bluestein, MD

In this episode of 'Bendy Bodies,' Dr. Linda Bluestein shares her personal journey to an EDS (Ehlers-Danlos Syndrome) diagnosis and discusses the complexities involved in diagnosing hypermobility disorders. She elaborates on the different types of connective tissue disorders, ways to pursue a diagnosis, and the potential benefits and challenges of obtaining one. Dr. Bluestein advises on how to approach medical professionals, the importance of having a supportive provider, and the resources available for preparing for doctor's visits. She also addresses the myths surrounding connective tissue disorders and emphasizes the importance of understanding the conditions' heterogeneity. This episode offers valuable insights for those feeling overwhelmed in their pursuit of a diagnosis and underscores the significance of being well-informed and having support throughout the journey.