33. Conquering the Wall: A Round Table Discussion

In this episode of the Bendy Bodies podcast, Jennifer Milner and Dr. Linda Bluestein host a round table discussion with artistic athletes Marimba Gold-Watts, Mariana J. Plick, Kyle Thompson, and Cailey Brandon about living with Ehlers-Danlos Syndrome (EDS) and its impact on their careers. The conversation covers the undiagnosed period many go through, where hypermobility led to injuries, and the reality of "hitting the EDS wall". The guests share personal stories, including experiences with POTS and other comorbidities, and discuss the importance of self-advocacy and building a supportive team of healthcare providers who understand their conditions. They also highlight the role of tailored exercise, including Pilates, in managing symptoms and improving strength. The panelists convey hope and resilience, offering advice to their younger selves and fellow sufferers of hypermobility disorders, emphasizing the significance of awareness and community.