19. Living fully with a Hypermobility Disorder with Linda Bluestein, M.D.
In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein discusses living with hypermobility disorders, notably Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD). Dr. Bluestein highlights various comorbidities that often accompany these conditions, such as dysautonomia, mast cell disorders, and autoimmune issues. She emphasizes the importance of a comprehensive management strategy that includes exercise, nutrition, and addressing psychosocial factors. Dr. Bluestein underscores the value of an empathetic primary care provider for navigating these disorders and shares her method of using an acronym to guide management. Additionally, she discusses the significance of education, including how both patients and clinicians can work collaboratively to integrate emerging research into effective treatment plans. The episode also tackles the challenges of accessing knowledgeable practitioners and the importance of building a supportive care team.